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manuel albarracin's avatar

Thanks for this illuminating analysis of the profound shortcomings of our health care delivery system.

I fully agree with how you call attention to the “void” (that a patient is left with in between encounters with care providers) as “the defining structural feature of episodic, reactive, transactional care”.

I respectfully disagree, however, with your prescribed solution for “phase 2”, not because it’s wrong but because I find it incomplete. The “data abstraction layer” you mention is good practice and it should improve the management capabilities of the provider organization, but for the service delivery system to operate “continuously, proactively, and with genuine longitudinal context” – i.e., for the void to be properly filled and to realize Phase 2 of the plan – I see as obvious the need for a personal health system (PHS) owned and operated by the patient herself (with the coordinated participation of the "family support system" and other informal caregivers).

Now, this PHS would certainly have to leverage the power of AI technologies (what they already offer, let alone what we might expect from them in the future) but it would have to be much more than a “mere” chatbot powered by an LLM (such as ChatGPT) – a composite of different algorithmic breeds (not just next-token prediction) along with conventional rules-based, deterministic components. And it most certainly would not depend on the enshittification-prone platforms of Big Tech and so-called foundation models and “hyperscalers”.

Further, it would naturally be a distinct system from the corporate EHR (such as Epic), but fully interoperable with it (I see a fundamental need to recognize the "separation of concerns" between the individual and the organization).

Only the PHS can IMO bring into the new encounter the full reality (not just a slice of it) impinging on the patient’s health, and which no provider-based information layer can capture on its own: the narrative of the person’s feelings, symptoms, facts, events and fears; her socioeconomic background; the toxins and pathogens she may have been exposed to in her daily life; the health risks lurking in her workplace; the habits and practices from which disease-inducing behaviors might be detected and addressed, etc. No matter how much the provider’s capabilities are augmented, it will (for obvious reasons) never cover the “void” with the depth and continuity that a personal system could.

Provided its assured safety and reliability (operated under an appropriate system of governance), only a PHS can fill the void in such a way that the provider’s care is effectively enhanced and forewarned, guided to better outcomes with the right intervention effort while afforded the opportunity for systematized learning.

I’ll admit that my take on the problem critically depends on the very feasibility of the PHS as a tool and as a business model. That’s my goal. Additionally, to the extent it is in fact feasible, I find it much easier to scale such a solution across thousands and millions in the population sharing the same basic need than it would be to upgrade the data management practices and organizational culture of hundreds and thousands of highly diverse and reluctant health care providers.

In any case, thanks for this great piece.

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